About the Systemic Lupus Erythematosus Working Group

SLE is a chronic autoimmune disease that affects multiple organ systems and significantly impacts patient-reported health-related quality of life (HRQoL). The clinical manifestations of SLE are heterogeneous, vary over time, and may include fatigue, pain, depression, sleep disturbance and cognitive dysfunction. The multisystemic nature of SLE poses a challenge for evaluating treatment benefit and underscores the importance of using a multidimensional approach when assessing HRQoL. In 1998, the Outcome Measures in Rheumatology (OMERACT) international consensus effort recommended five domains for assessment in all randomised controlled trials (RCTs) and longitudinal observational studies (LOS) in SLE, including disease activity, damage, HRQoL, adverse events and economic costs.

This working group will be working on an update to the existing Core Set.

Lee Simon

Lee Simon

Co-Chair

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Vibeke Strand

Co-Chair

Zahi touma

Zahi Touma

Co-Chair

Wils Nielsen

Fellow

Working Group Members:

Eric Morand
Ian Bruce
Julian Thumboo
Lee Simon
Marta Mosca
Martin Aringer
Vibeke Strand
Zahi Touma
David Tunnicliffe
Debra Hurst
Franc Marchiori
Izabel Oliveira
Janeen Mays
Karina Svalya
Lucretia Taper
Mariah Rose
Wils Nielsen
Alexa Meara
Cristina Drenkard
Alessandra Bortoluzzi
Amanda Steiman
Anca D Askanase
Andrea Doria
Anisur Rahman
Ann Elaine Clarke
Antonio Avina-Zubieta
Bimba Hoyer
Brad Rovin
Caroline Gordon
Chiara Tani
Chris Wincup
Christine Peschken
Cyhnthia Aranow
Dafna Gladman
Daniel Wallace
Diane Kamen
David Isenberg
Eduardo F. Borba
Edward Vital
Eloisa Bonfa
Gamal Chehab
George Karpouzas
Guillermo Ruiz-Irastorza
Herve Devilliers
Irene Bultink
Janet Pope
Jinoos Yazdany
Joan Wither
Jorge Sanchez Guerrero
Juanita Romero Diaz
Karen Costenbader

Karen Costenbader
Kelsey Schmitt
Kenneth Kalunian
Alfred Kim
Lai-Shan Tam
Laurent Arnaud
Lee-Suan Teh
Liz Lightstone
Luis Sousa Ines
Mandana Nikpour
Manuel Francisco Ugarte-Gil
Maria Dall'Era
Mark Matsos
Matthias Schneider
Marcello Govoni
May Choi
Michelle Petri
Nathalie Costedoat-Chalumeau
Naureen Kabani
Oshrat Tayer Shifman
Patti Katz
Peter Korsten
Peter Tugwell
Rosalind Ramsey-Goldman
Sandra Navara
Sasha Bernatsky
Simone Appenzeller
Soeren Jacobsen
Sonali Narain
Stephanie Ensworth
Stephanie Keeling
Thomas Doerner
Victoria P. Werth
Yashaar Chaichian
Zahir Amoura
Ali Duarte Garcia
Brad Stolshek
Elaine Karis
Sandra Graces
Eric Zollars
Julie A Birt
Amy H Kao
Oliver Guenther
Pam Berry
Alyssa Johnsen
Qing Zuraw
Elizabeth Kruel-Starr
Roger Levy
David Brooks
Tania Gonzalez
Greve Bernhard

Lara Fallon
Todd Fox
Corrine Gaillez
Chris Lindsay
Frederic Lavie
Alessandro Sorrentino
Raj Tummala
Laura Whittall-Garcia
Kirsten Lerstrom
Francesca Marchiori
Davide Mazzoni
Nelma Nimaut
Amy Reynolds
Corry Ang
Adwoa Parker
Michelle Barraclough
Nathalie Rozenbojm
Sergio M A Toloza
Evelyne Vinet
Alexandra Legge
Taneisha K McGhie
Paul R Fortin
Désirée Tulloch-Reid
Megan Barber
Gian Domenico Sebastiani
Ricard Cervera
Hanan Al-Rayes
Guillermo J Pon-Estel
John Reynolds
Chaim Putterman
Shanthini Kasturi
Claire E Barber
Mahmoud Abu-Shakra
Chiara Tani
April Jorge
Ibrahim Ali Almaghlouth
Arenn Singh Jauhal
Meggan Mackay
Derek Haaland
Behdin Nowrouzi-Kia
Saira Z Sheikh
Nelly Ziade
Cheryl Rosen
Isabelle Fortin
Md Yuzaiful Md Yusof
Luca Iaccarino
George Bertsias
Neda Amiri
Khalid Alnaqbi
Maria-Antonietta D’Agostino Mada
Gary L Bryant

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