WORKING GROUP NAME: ANCA VASCULITIS

The OMERACT Vasculitis Study Group has been working on ways of measuring health-related quality of life in patients with ANCA-associated vasculitis (AAV). Focusing on the assessment of quality of life is important for inclusion in future clinical studies and allow for measurement of the effect of treatment on aspects of disease which are most important to patients. Patients with AAV have inflammation in the small blood vessels leading to involvement of a range of different body areas, for example the kidneys, lungs, and skin. Major progress has been made in the treatment of AAV, but patients often still suffer from ongoing disease activity or treatment side effects which have a negative impact on quality of life.