About the ANCA-Associated Vasculitis Working Group
The methods for creating a composite outcome are different than for individual domain-directed outcomes and this Workshop will help attendees understand the steps required for this process through a project that is funded by ACR and EULAR to create response criteria for ANCA-associated vasculitis for use in clinical trials. Attendees are encouraged before the Workshop to view the short but highly informative videos developed to inform everyone on the disease under study and the methods employed for this project.
Haner Direskeneli
Co-Chair
Peter Merkel
Co-Chair
Gunnar Tómasson
Co-Chair
Kaitlin Quinn
Fellow
Sara Monti
Fellow
Georgia Lanier
Patient Research Partner
Introduction to Antineutrophil cytoplasmic antibody ANCA-Associated Vasculitis
Introduction To Methodology To Develop A Composite Outcome Measure For ANCA-Associated Vasculitis
OMERACT Endorsed Core Set of Outcome Measures for Clinical Trials in Antineutrophil Cytoplasmic Antibody-Associated Vasculitis
Working Group Publications
Developing a composite outcome tool to measure response to treatment in ANCA-associated vasculitis: A mixed methods study from OMERACT 2020
OMERACT Endorsement of Patient-reported Outcome Instruments in Antineutrophil Cytoplasmic Antibody–associated Vasculitis
Exploration, development, and validation of patient-reported outcomes in ANCA-associated vasculitis utilizing the OMERACT process
The OMERACT Core Set of Outcome Measures for Use in Clinical Trials of ANCA-associated Vasculitis
Working Group Members:
Ahmet Gul
Alessandro Tomelleri
Alexa Meara
Alireza Meysami
Alfred Mahr
Alwin Sebastian
Amir Rezaee
Anetta Chrzanowska
Annelies Boonen
Antoine Sreih
Anupam Wakhlu
Aya Akmal Amin
B Robert Mozayeni
Beverley Shea
CARLOS GUILLEN ASTETE
Carol Langford
Catherine Hill
Chetan Mukhtyar
Christian Dejaco
Christian Pagnoux
Christoph Pohl
Corrado Campochiaro
Dario Camellino
Dario Scublinsky
David Jayne
Durga Prasanna Misra
Elisabeth Brouwer
Esen Cam
Fahimeh Farjami
Fatma Alibaz-Oner
Fiona Campbell
Francesco Caso
Gabriela Tabaj
GARY CHOQUE
Gehad Maghraby
George Casey
George Wells
Georgia Lanier
Ghaydaa Dabie
Gonca Mumcu
Gulen Hatemi
Gunnar Tomasson
Haner Direskeneli
Heidi Nugent
Ibrahim Almaghlouth
Ilfita Sahbudin
Inna Gaydukova
Jackie Peck
Jill Dawson
Joanna Robson
John Farrar
Judy Shea
Kaitlin Quinn
Karen Herlyn
Karla vanessa Jirón Mendiola
Kate smith
Katelyn Zottenberg
Katherine Kellom
Kenta Misaki
Krystyne King
Kyung Min Ko
Lays De Souza
Maarten Boers
Magali Travaglia
Maria Bjorkvidarsdottir
Maria Teresa Romero de Albrecht
Marlene Morrison
Marta Moura
Maxine Isbel
Mert Gurcan
Nataliya Milman
Nihal Esatoglu
Nino Tsiskarishvili
Noreen Nasir
Pauline Parris
Peter Cronholm
Peter Grayson
Peter Merkel
Peter Tugwell
Raashid Luqmani
Raouf Hajji
Robin Christensen
Rodica Olteanu
Ruoning (Lemon) Ni
Samar Tharwat
SARA MONTI
Sarah Mackie
Sasikala Bheemireddy
Sevil Kamali
Shawna Grosskleg
Sibel Zehra Aydin
Sinem Nihal Esatoglu
Susan Beard
Tamer Gheita
Tanaz Kermani
Teodora Serban
Toby Helliwell
Virna Levi
William Lichliter
Wolfgang Schmidt
Yasser El Miedany
Yesim Ozguler
Yusuf Yazici