About the ANCA-Associated Vasculitis Working Group
The methods for creating a composite outcome are different than for individual domain-directed outcomes and this Workshop will help attendees understand the steps required for this process through a project that is funded by ACR and EULAR to create response criteria for ANCA-associated vasculitis for use in clinical trials. Attendees are encouraged before the Workshop to view the short but highly informative videos developed to inform everyone on the disease under study and the methods employed for this project.
Haner Direskeneli
Co-Chair
Peter Merkel
Co-Chair
Gunnar Tómasson
Co-Chair
Kaitlin Quinn
Fellow
Sara Monti
Fellow
Introduction to Antineutrophil cytoplasmic antibody ANCA-Associated Vasculitis
Introduction To Methodology To Develop A Composite Outcome Measure For ANCA-Associated Vasculitis
OMERACT Endorsed Core Set of Outcome Measures for Clinical Trials in Antineutrophil Cytoplasmic Antibody-Associated Vasculitis
Working Group Publications
Developing a composite outcome tool to measure response to treatment in ANCA-associated vasculitis: A mixed methods study from OMERACT 2020
The OMERACT Core Set of Outcome Measures for Use in Clinical Trials of ANCA-associated Vasculitis
Exploration, development, and validation of patient-reported outcomes in ANCA-associated vasculitis utilizing the OMERACT process
OMERACT Endorsement of Patient-reported Outcome Instruments in Antineutrophil Cytoplasmic Antibody–associated Vasculitis
Working Group Members:
Sibel Aydin
Maria Björk
Robin Christensen
Christian Dejaco
Haner Direskeneli
Peter Grayson
Gülen Hatemi
David Jayne
Tanaz Kermani
Carol Langford
Georgia Lanier
Sarah Mackie
Alfred Mahr
Alexa Meara
Peter Merkel
Nataliya Milman
Sara Monti
Christian Pagnoux
Kaitlin Quinn
Joanna Robson
Gunnar Tómasson
Peter Tugwell