About the OMERACT Scleroderma Vascular Disease Working Group
Systemic sclerosis (also called scleroderma) is a multi-system autoimmune disease with several organ- and life-threatening manifestations. Progress in developing effective treatments for scleroderma has, in part, been hampered by a lack of reliable, feasible, and valid outcome measures. The OMERACT Scleroderma Vascular Disease Working Group has been working to draft a core set of domains relevant to the study of two related manifestations of disease: Raynaud’s phenomenon and digital ulcers. This SIG, the first for this group, will outline the significant progress made to date and seek input from the OMERACT community about next steps in the process.
Ariane Herrick
Co-Chair
Peter Merkel
Co-Chair
John Pauling
Co-Chair
Susanna Proudman
Co-Chair
Michael Hughes
Fellow
Nancy Maltez
Fellow
Edith Brown
Patient Research Partner
Virginia Hickey
Patient Research Partner
Introductory video to Systemic Sclerosis with a focus on Raynaud's phenomenon and digital ulcers
Working Group Publications
Domain reporting in systemic sclerosis-related Raynaud’s phenomenon: An OMERACT scoping review
Domain reporting in Systemic Sclerosis-Related Digital Ulcers: An OMERACT Scoping Review
Developing a core set of outcome measure domains to study Raynaud’s phenomenon and digital ulcers in systemic sclerosis: Report from OMERACT 2020
A multi-national qualitative research study exploring the patient experience of Raynaud’s phenomenon in systemic sclerosis
Measures of Response in Clinical Trials of Systemic Sclerosis: The Combined Response Index for Systemic Sclerosis (CRISS) and Outcome Measures in Pulmonary Arterial Hypertension Related to Systemic Sclerosis (EPOSS)
SSc—Continuing Progress in Developing Clinical Measures of Response
Scleroderma — Developing Measures of Response
Current Status of Outcome Measure Development for Clinical Trials in Systemic Sclerosis. Report from OMERACT 6
Working Group Members:
Amanda Feagans
Anupam Wakhlu
Ariane Herrick
Aya Akmal Amin
Beverley Shea
Carina Bostrom
Christopher Mecoli
Clesmanya Pereira
Corrado Campochiaro
David Roofeh
Dinesh Khanna
Edith Brown
Ellen Romich
Gabriela Tabaj
Gary Chocque
Gehad Maghraby
Ghaydaa Dabie
Heiyoung Park
John Pauling
Kenta Misaki
Khaled Abdelgalil
Kyung Min Ko
Luc Mouthon
Luca Iaccarino
Maria Teresa Romero de Albrecht
Maxine Isbel
Michael Hughes
Nancy Maltez
Nino Tsiskarishvili
Noreen Nasir
Peter Merkel
Peter Tugwell
Raouf Hajji
Rashed Toticelli
Rositsa Karalilova
Shawna Grosskleg
Sonali Narain
Sule Yavuz
Susanna Proudman
Tamer Gheita
Teodora Serban
Thasia Woodworth
Vibeke Strand
Virginia Fernandes Moca Trevisani
Virginia Hickey