About the OMERACT Scleroderma Vascular Disease Working Group

Systemic sclerosis (also called scleroderma) is a multi-system autoimmune disease with several organ- and life-threatening manifestations. Progress in developing effective treatments for scleroderma has, in part, been hampered by a lack of reliable, feasible, and valid outcome measures. The OMERACT Scleroderma Vascular Disease Working Group has been working to draft a core set of domains relevant to the study of two related manifestations of disease: Raynaud’s phenomenon and digital ulcers. This SIG, the first for this group, will outline the significant progress made to date and seek input from the OMERACT community about next steps in the process.

ariane herrick

Ariane Herrick

Co-Chair

Peter Merkel

Peter Merkel

Co-Chair

John Pauling

John Pauling

Co-Chair

susanna proudman

Susanna Proudman

Co-Chair

Michael Hughes

Michael Hughes

Fellow

Nancy Maltez

Nancy Maltez

Fellow

Edith Brown

Edith Brown

Patient Research Partner

Virginia Hickey

Virginia Hickey

Patient Research Partner

Introductory video to Systemic Sclerosis with a focus on Raynaud's phenomenon and digital ulcers

Working Group Members:

Amanda Feagans
Anupam Wakhlu
Ariane Herrick
Aya Akmal Amin
Beverley Shea
Carina Bostrom
Christopher Mecoli
Clesmanya Pereira
Corrado Campochiaro
David Roofeh
Dinesh Khanna
Edith Brown
Ellen Romich
Gabriela Tabaj
Gary Chocque
Gehad Maghraby
Ghaydaa Dabie
Heiyoung Park
John Pauling
Kenta Misaki
Khaled Abdelgalil
Kyung Min Ko
Luc Mouthon

Luca Iaccarino
Maria Teresa Romero de Albrecht
Maxine Isbel
Michael Hughes
Nancy Maltez
Nino Tsiskarishvili
Noreen Nasir
Peter Merkel
Peter Tugwell
Raouf Hajji
Rashed Toticelli
Rositsa Karalilova
Shawna Grosskleg
Sonali Narain
Sule Yavuz
Susanna Proudman
Tamer Gheita
Teodora Serban
Thasia Woodworth
Vibeke Strand
Virginia Fernandes Moca Trevisani
Virginia Hickey

Interested in joining the working group as a member?

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In addition to joining our mailing list, we also encourage you to become part of our active Working Groups. Being part of these groups is an opportunity to collaborate with experts in the field, contribute to important discussions, and influence the future direction of rheumatology outcomes research.
We look forward to your valuable contributions and active participation in our community.

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