About the Systemic Sclerosis Working Group

Systemic sclerosis (also called scleroderma) is a multi-system autoimmune disease with several organ- and life-threatening manifestations. Progress in developing effective treatments for scleroderma has, in part, been hampered by a lack of reliable, feasible, and valid outcome measures. The OMERACT Scleroderma Vascular Disease Working Group has been working to draft a core set of domains relevant to the study of two related manifestations of disease: Raynaud’s phenomenon and digital ulcers. This SIG, the first for this group, will outline the significant progress made to date and seek input from the OMERACT community about next steps in the process.

ariane herrick

Ariane Herrick

Co-Chair

Peter Merkel

Peter Merkel

Co-Chair

John Pauling

John Pauling

Co-Chair

susanna proudman

Susanna Proudman

Co-Chair

Nancy Maltez

Nancy Maltez

Fellow

Michael Hughes

Michael Hughes

Fellow

Edith Brown

Edith Brown

Patient Research Partner

Virginia Hickey

Virginia Hickey

Patient Research Partner

Introductory video to Systemic Sclerosis with a focus on Raynaud's phenomenon and digital ulcers

OMERACT 2020 Virtual Systemic sclerosis Special Interest Group Meeting

Working Group Members:

John Pauling
Peter Merkel
Susanna Proudman
Edith Brown
Virginia Hickey
Michael Hughes

Nancy Maltez
Bev Shea
Heiyoung Park
Peter Tugwell
Ashima Makol

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