WORKING GROUP NAME: SYSTEMIC SCLEROSIS

Systemic sclerosis (also called scleroderma) is a multi-system autoimmune disease with several organ- and life-threatening manifestations. Progress in developing effective treatments for scleroderma has, in part, been hampered by a lack of reliable, feasible, and valid outcome measures. The OMERACT Scleroderma Vascular Disease Working Group has been working to draft a core set of domains relevant to the study of two related manifestations of disease: Raynaud’s phenomenon and digital ulcers. This SIG, the first for this group, will outline the significant progress made to date and seek input from the OMERACT community about next steps in the process.

Introductory video to Systemic Sclerosis with a focus on Raynaud's phenomenon and digital ulcers

CO-CHAIRS

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Ariane Herrick:

ariane.herrick@manchester.ac.uk

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Peter Merkel:

pmerkel@upenn.edu

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John Pauling:

JohnPauling@nhs.net

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Susanna Proudman:

sproudman@internode.on.net

FELLOW

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Nancy Maltez

FELLOW

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Michael Hughes

PRP

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Edith Brown

PRP

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Virginia Hickey

MEMBERSHIP:

John Pauling
Peter Merkel
Susanna Proudman
Edith Brown

Virginia Hickey
Michael Hughes
Nancy Maltez
Bev Shea

Heiyoung Park
Peter Tugwell
Ashima Makol