About the Remission in RA Patient Perspective Working Group
At OMERACT 2010, the draft ACR-EULAR criteria for remission in rheumatoid arthritis (RA) were criticized because participants felt insufficient patient-important information may be included, despite the PtGA. A working group was formed to address this problem.
Qualitative work and surveys published by this group established that pain, fatigue, and independence are the most important domains that patients consider when deciding whether they are in remission (‘disease activity as good as gone’).
A longitudinal study by the working group determined that numerical rating scales to measure pain and fatigue are optimally valid and feasible, BUT no ideal instrument for independence exists currently.
The next phase includes a scoping review of how independence in RA is represented in the literature and qualitative work to understand the patient perspective of independence in the context of remission in RA, what factors influence this and subsequently what instrument should be developed to measure independence.
Patient Research Partner
Patient Research Partner
Virtual Session: Endorsement of the OMERACT Definition of Independence in RA Remission
The first OMERACT virtual session of 2024, is dedicated to the endorsement of the OMERACT definition of independence within the context of Rheumatoid Arthritis (RA) remission. February 26th, 2024, from 7:00 AM to 8:30 AM EST.
Our goal is to agree on a patient-centered definition of independence that accurately captures the experiences of those living with RA. Through presentations, sharing of PRP stories, and group discussions, we aim to reach a consensus on a definition that truly reflects the patient perspective.
To attend, please click here! Post-registration, you'll receive an email with the meeting details.
Remission in RA Patient Perspective Pre-Meeting Video
Working Group Publications
Defining independence: A scoping review by the OMERACT patient perspective of remission in rheumatoid arthritis group
Patient perspective on remission in rheumatoid arthritis: Validation of patient reported outcome instruments to measure absence of disease activity
Considerations and priorities for incorporating the patient perspective on remission in rheumatoid arthritis: An OMERACT 2020 special interest group report
OMERACT patient remission Summary of research and proposal for questions the SIG can answer / end product
Validating Rheumatoid Arthritis Remission Using the Patients’ Perspective: Results from a Special Interest Group at OMERACT 2016
Remission in Rheumatoid Arthritis: Working Toward Incorporation of the Patient Perspective at OMERACT 12
Working Group Members:
Aya Akmal Amin
B Robert Mozayeni
Chu Hieu chi
Ingrid Moller Parera
JKaren Natali Saravia Chocobar
Lays De Souza
Maarten de Wit
Madusha Menu Cristeen Jayasinghe
Sytske Anne Bergstra