About the Myositis Working Group

Idiopathic inflammatory myopathies (IIM) are rare inflammatory autoimmune diseases, commonly with primary involvement of the skeletal muscle. IIM are multi-system diseases often extending beyond muscle weakness and may involve the lungs, joints, skin, and the gastrointestinal tract.

The aim of the Outcome Measures in Rheumatology (OMERACT) Myositis group is to identify core domains and instruments that reflect the life impact area in IIM, with strong patient participation.


Helene Alexanderson



Jin Park


chris mecoli

Chris Mecoli



Lisa Christopher-Stine



Dana DiRenzo


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Didem Saygin


Ellen Romich


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Ingrid de Groot

Patient Research Partner

Catherine s

Catherine Sarver

Patient Research Partner

OMERACT Endorsed Core Domain Set for use in Clinical Trials/LOS in Myositis

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Working Group Members:

Adeebah Adams
Ales Ambrozic
Alireza Meysami
Amanda Feagans
Amaury Brianez
Angie Botto-van Bemden
Anupam Wakhlu
Aya Akmal Amin
Bev Shea
Brian Feldman
Catherine Sarver
Chris Mecoli
Chu Hieu chi
Clifton (Bing) Bingham
Corrado Campochiaro
Dana Direnzo
Didem Saygin
Edoardo Conticini
Eduardo Dourado
Elena Garcia Guijarro

Ellen Romich
Esther Francisca Vicente-Rabaneda
Frank Tay
Gabriela Tabaj
Gary Choque
Gehad Maghraby
Ghaydaa Dabie
Helene Alexanderson
Hemalatha Srinivasalu
Ingrid de groot
Ingrid Moller Parera
Jane Hayes
Javier Rios
Jin Kyun Park
Joost Raaphorst
Josephine Park
Ju Yeon Kim
Kaniah Gunter
Kapil Garg
Karen Natali Saravia Chocobar

Karin Lodin
Khaled Abdelgalil
Kyung Min Ko
Lays De Souza
Lesley Ann Saketoo
Lisa Christopher-Stine
Luca Iaccarino
Madusha Menu Cristeen Jayasinghe
Malin Regardt
Manuel Lubinus
Maria Dominguez
Maria Teresa Romero de Albrecht
Marianne de Visser
Maxine Isbel
Merrilee Needham
Michael Maldonado
Minh Vu
Mohammed Osman
Monica Vieth

Nino Tsiskarishvili
Oliver Krâmer
Panagiotis Ermeidis
Patricia Hurley
Pedro Machado
Peter Tugwell
Pierrette Baschung Pfister
Raouf Hajji
Samar Tharwat
Sasikala Bheemireddy
Shinji Izuka
Sike Schluter
Tamer Gheita
Teodora Serban
Tracy Stryczynski
Victoria Werth
Yeong Wook Song
Yuya Imai

Interested in joining the working group as a member?

We are excited to invite you to join the OMERACT mailing list! This will ensure you stay updated on our latest news and activities.
In addition to joining our mailing list, we also encourage you to become part of our active Working Groups. Being part of these groups is an opportunity to collaborate with experts in the field, contribute to important discussions, and influence the future direction of rheumatology outcomes research.
We look forward to your valuable contributions and active participation in our community.


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