About the Myositis Working Group

Idiopathic inflammatory myopathies (IIM) are rare inflammatory autoimmune diseases, commonly with primary involvement of the skeletal muscle. IIM are multi-system diseases often extending beyond muscle weakness and may involve the lungs, joints, skin, and the gastrointestinal tract.

The aim of the Outcome Measures in Rheumatology (OMERACT) Myositis group is to identify core domains and instruments that reflect the life impact area in IIM, with strong patient participation.

Helene Alexanderson

Helene Alexanderson

Co-Chair

Lisa Christopher-Stine

Lisa Christopher-Stine

Co-Chair

Jin Park

Co-Chair

chris mecoli

Chris Mecoli

Fellow

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Ingrid de Groot

Patient Research Partner

Catherine Sarver

Patient Research Partner

OMERACT Endorsed Core Domain Core Domain Set for use in Clinical Trials/LOS in Myositis

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Working Group Members:

 Bing Bingham
Catherine Sarver
Christopher Mecoli
Dana DiRenzo
Dorcas Beaton
Helene Alexanderson
Ingrid de Groot
Ingrid Lundberg

 Jin Park
Lara Maxwell
Lisa Christopher-Stine
Malin Regardt
Marianne de Visser
Merrilee Needham
Yeong-Wook Song

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