About the Myositis Working Group
Idiopathic inflammatory myopathies (IIM) are rare inflammatory autoimmune diseases, commonly with primary involvement of the skeletal muscle. IIM are multi-system diseases often extending beyond muscle weakness and may involve the lungs, joints, skin, and the gastrointestinal tract.
The aim of the Outcome Measures in Rheumatology (OMERACT) Myositis group is to identify core domains and instruments that reflect the life impact area in IIM, with strong patient participation.

Helene Alexanderson
Co-Chair

Jin Park
Co-Chair

Chris Mecoli
Co-Chair

Lisa Christopher-Stine
Co-Chair

Didem Saygin
Emerging Leader
Ellen Romich
Fellow

Ingrid de Groot
Patient Research Partner

Catherine Sarver
Patient Research Partner
OMERACT Endorsed Core Domain Set for use in Clinical Trials/LOS in Myositis
