About the Equity, Diversity & Inclusivity Working Group
In the field of outcome research, instruments (tools used to measure outcomes) are a potential source of health inequity. This is because they are often developed and tested in populations who regularly take part in research i.e. predominantly white, middle class and well-educated. As a result, they may not measure the outcome as well when applied to under-represented populations.
The aim of this working group is to describe the key questions for researchers to consider to promote health equity when developing or using outcome measures in rheumatology. We will discuss the key ways that population differences can be considered when developing or selecting an instrument for a study.
Jennifer Barton
Co-Chair
Francis Guillemin
Co-Chair
Lara Maxwell
Co-Chair
Grace Wright
Co-Chair
Equity Working Group Overview
Working Group Publications
Development of an extension of the OMERACT Summary of Measurement Properties table to capture equity considerations: SOMP-Equity
Health Equity Considerations for Developing and Reporting Patient-reported Outcomes in Clinical Trials: A Report from the OMERACT Equity Special Interest Group
Towards ensuring health equity: Readability and cultural equivalence of OMERACT patient-reported outcome measures
Including Health Equity Considerations in Development of Instruments for Rheumatology Research: An Introduction to a Novel OMERACT Paradigm
Health Literacy: What Is It and Why Is It Important to Measure?
Working Group Members:
Adewale Adebajo
Aimée Wattiaux
Alex Lee
Ali Shams
Allyson Jones
Angie Botto-van Bemden
Annelies Boonen
Antoine Sreih
Aurelie Najm
Aya Akmal Amin
Beverley Shea
Bruno Mazuquin
Caroline Flurey
Catherine Hofstetter
Charlie Goldsmith
Charmaine Jones
Cheryl Barnabe
Christie Bartels
Christoph Pohl
Denise Bury
Diane Lacaille
Dorcas Beaton
Dorthe Berthelsen Berthelsen
Elena Nikiphorou
Fiona Campbell
Fiona Campbell
Francis Guillemin
Glen Hazlewood
Grace Wright
Grayson Schultz
Ilfita Sahbudin
Ina Campbell
Janet Jull
Jasvinder Singh
Jennifer Barton
jennifer Petkovic
Jenny Humphreys
John Fitzgerald
Jonathan Epstein
Jordi Pardo Pardo
Joy Macdermid
Karina Torralba
Karine Toupin April
Lara Maxwell
Lihi Eder
Lisa Christopher-Stine
Maarten de Wit
Marios Kouloumas
Maya Desai
Mayuredh Pathak
Mwidimi Ndosi
Nancy Santesso
Niti Goel
Noreen Nasir
Oscar Russell
Patricia Hurley
Peter Brooks
Peter Tugwell
Polina Putrik
rachelle buchbinder
Rebecca Johnson
Regina Greer-Smith
Robin Christensen
Sabrina Mai Nielsen
Sergio Kowalski
Shawna Grosskleg
Takako Kaneyasu
Tamara Rader
Tamer Gheita
Tara Swami
Thasia Woodworth
Valerie Umaefulam
Vivian Welch
Yasser El Miedany