About the Equity, Diversity & Inclusivity Working Group
In the field of outcome research, instruments (tools used to measure outcomes) are a potential source of health inequity. This is because they are often developed and tested in populations who regularly take part in research i.e. predominantly white, middle class and well-educated. As a result, they may not measure the outcome as well when applied to under-represented populations.
The aim of this working group is to describe the key questions for researchers to consider to promote health equity when developing or using outcome measures in rheumatology. We will discuss the key ways that population differences can be considered when developing or selecting an instrument for a study.
Equity Working Group Overview
Working Group Publications
Development of an extension of the OMERACT Summary of Measurement Properties table to capture equity considerations: SOMP-Equity
Health Equity Considerations for Developing and Reporting Patient-reported Outcomes in Clinical Trials: A Report from the OMERACT Equity Special Interest Group
Towards ensuring health equity: Readability and cultural equivalence of OMERACT patient-reported outcome measures
Including Health Equity Considerations in Development of Instruments for Rheumatology Research: An Introduction to a Novel OMERACT Paradigm
Working Group Members:
Maarten de Wit
Regina Greer Smith
Sabrina Mai Neilsen
Adewale O Adebajo