About the Connective Tissue Disease - Interstitial Lung Disease (CTD-ILD) Working Group

Interstitial lung diseases (ILD), including those related to connective tissue disease (CTD), and idiopathic pulmonary fibrosis (IPF) carry high morbidity and mortality.

Great efforts are under way to develop and investigate meaningful treatments in the context of clinical trials. However, efforts have been challenged by a lack of validated outcome measures and by inconsistent use of measures in clinical trials.


Dinesh Khanna


susanna proudman

Susanna Proudman


Athol Wells


david roofeh

David Roofeh


Technical Advisory Group Instrument Townhall Presentation from the CTD-ILD group of their Instruments for Lung Physiology

OMERACT Endorsed Core Domain Set Clinical Trials in Connective Tissue Disease - Interstitial Lung Disease (CTD-ILD)

ctd ild core set

Working Group Members:

Alibaz-Oner, Fatma
Aydin, Sibel
Björk, María
Cam, Esen
Christensen, Robin
Dejaco, Christian
Direskeneli, Haner
Grayson, Peter
Hatemi, Gülen

Jayne, David
Kermani, Tanaz
Langford, Carol
Lanier, Georgia
Mackie, Sarah
Mahr, Alfred
Meara, Alexa
Milman, Nataliya
Ozguler, Yesim

Pagnoux, Christian
Robson, Joanna
Shea, Beverly
Tómasson, Gunnar
Merkel, Peter
Milman, Nataliya
Monti, Sara
Quinn, Kaitlin
Tugwell, Peter

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