About the Chronic Nonbacterial Osteomyelitis (CNO) Working Group

Chronic nonbacterial osteomyelitis (CNO) is an autoinflammatory bone disease of unknown cause. While some patients develop unifocal and time-limited disease, most experience chronically active or recurrent disease affecting multiple bones, known as chronic recurrent multifocal osteomyelitis (CRMO). CNO is most frequently diagnosed in children and adolescents but can extend into adulthood.

This working group will be working on getting endorsement on an OMERACT Core Domain Set.

pmease

Philip Mease

Co-Chair

dan zhao

Yongdong (Dan) Zhao

Co-Chair

Jonathan Akikusa - Co-Chair
Christian Hedrich - Co-Chair
Melissa Oliver - Fellow
Bethany Welc - Patient Research Partner

atheos@crmofoundation.org

Alex Theos 

Patient Research Partner

Working Group Members:

Aleksander Lenert
Alex Theos
Alissa Nelson
Aruni Jayatilleke
Athimalaipet Ramanan
Aya Akmal Amin
Bethany Welc
Beverley Shea
Christian Hedrich
Deb Saunders-Chatwin
edoardo marrani
Elena García Guijarro
Elizabeth Winter
Emily Fox
Emily Schildt
Farzana Nuruzzaman

Gabriele Simonini
Gary Choque
Gehad Maghraby
Hermann Girschick
Inna Gaydukova
Javier Rios
Jenna King
Jennifer Stimec
Jonathan Akikusa
Karen Natali Saravia Chocobar
Karen Onel
Karmela Chan
Katerina Bouchalova
Katherin Carpenter
Liliia Shvets
Lindsay Bergstrom

Madusha Menu Cristeen Jayasinghe
Maricela Guzman
Marinka Twilt
Matthew Hollander
Melissa Oliver
Monica Vieth
Mustafa Serdar Cantez
Natalia Palmou
Nicola Stephens
Olympia Papakonstantinou
Ori Elkayam
Patricia Lahy Engel
Perrine Dusser-Benesty
Peter Tugwell
Philip Helliwell

Philip Mease
Romano Micol
Samir Shah
Sara Stern
Sarah Whelan
Sasikala Bheemireddy
Seza Ozen
Shahrzad Abdollahi
Sierra Gerber
Simone Appenzeller
Suzanne Li
Tamer Gheita
Tracy Stryczynski
Victoria Furer
Win Min Oo
Yongdong (Dan) Zhao

Interested in joining the working group as a member?

We are excited to invite you to join the OMERACT mailing list! This will ensure you stay updated on our latest news and activities.
In addition to joining our mailing list, we also encourage you to become part of our active Working Groups. Being part of these groups is an opportunity to collaborate with experts in the field, contribute to important discussions, and influence the future direction of rheumatology outcomes research.
We look forward to your valuable contributions and active participation in our community.

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