About the Adult-onset Still's Disease Working Group

AOSD is a rare type of inflammatory arthritis that causes inflammation resulting in joint damage, high fevers and rashes. AOSD mainly develops in people between the ages of 16-35.While there is no cure for AOSD, remission (having little to no visible symptoms) is possible.

Autoinflammatory diseases, such as AOSD, are characterized by an overactive immune system – the body’s defense system against invaders like bacteria and viruses. In AOSD, the immune system mistakenly becomes active when there is no invasion to fight, causing damage to the body’s own cells.


Haner Direskeneli


Peter Merkel

Peter Merkel



Gunnar Tómasson


kaitlin quinn

Kaitlin Quinn


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Sara Monti


georgia lanier

Georgia Lanier

Patient Research Partner

Introduction to Antineutrophil cytoplasmic antibody ANCA-Associated Vasculitis

Introduction To Methodology To Develop A Composite Outcome Measure For ANCA-Associated Vasculitis

OMERACT Endorsed Core Set of Outcome Measures for Clinical Trials in Antineutrophil Cytoplasmic Antibody-Associated Vasculitis

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Working Group Members:

Alibaz-Oner, Fatma
Aydin, Sibel
Björk, María
Cam, Esen
Christensen, Robin
Dejaco, Christian
Direskeneli, Haner
Grayson, Peter
Hatemi, Gülen

Jayne, David
Kermani, Tanaz
Langford, Carol
Lanier, Georgia
Mackie, Sarah
Mahr, Alfred
Meara, Alexa
Milman, Nataliya
Ozguler, Yesim

Pagnoux, Christian
Robson, Joanna
Shea, Beverly
Tómasson, Gunnar
Merkel, Peter
Milman, Nataliya
Monti, Sara
Quinn, Kaitlin
Tugwell, Peter

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