About the Adult-onset Still's Disease Working Group
AOSD is a rare type of inflammatory arthritis that causes inflammation resulting in joint damage, high fevers and rashes. AOSD mainly develops in people between the ages of 16-35.While there is no cure for AOSD, remission (having little to no visible symptoms) is possible.
Autoinflammatory diseases, such as AOSD, are characterized by an overactive immune system – the body’s defense system against invaders like bacteria and viruses. In AOSD, the immune system mistakenly becomes active when there is no invasion to fight, causing damage to the body’s own cells.
Patient Research Partner
Introduction to Antineutrophil cytoplasmic antibody ANCA-Associated Vasculitis
Introduction To Methodology To Develop A Composite Outcome Measure For ANCA-Associated Vasculitis
OMERACT Endorsed Core Set of Outcome Measures for Clinical Trials in Antineutrophil Cytoplasmic Antibody-Associated Vasculitis
Working Group Publications
Exploration, development, and validation of patient-reported outcomes in ANCA-associated vasculitis utilizing the OMERACT process
Working Group Members: