Last seen: May 14, 2026
Dear Cindy, Actually, sleep problems (isolated from other quality-of-life issues) were not identified in either the qualitative research or the Del...
Thank you for bringing up these important issues, we really appreciate it. We have updated the module to include captions on the video. While Rise 360...
Dear Sharko, We do agree that pain is more than intensity and interference, and type can be one. This can be captured by the instruments to measure...
Dear Maarten, Thank you for your difficult questions that make us think deep. Let’s see if we can satisfy your needs. On the relationship to the...
You’re absolutely right. Damage was initially included as ‘joint deformity’ and ‘progression’. In the rounds of voting, ‘progression’ was left out, an...
Dear Francesco, Thank you very much for your support. Comorbidities are a critical challenge to measure and standardise. We would like someone to ta...
Dear Lyn, We agree that ‘cause of death’ is relevant information to collect in the long term. However, is it truly a subdomain? Or is it already an...
Dear Heidi, You’re absolutely right. In the previous versions of the ‘joint involvement’ domain, we had included ‘joint deformity’ as a subdomain (f...
Thank you, Cesar. We totally agree that fatigue is a complex issue with a physical component and a more psychosocial one. Since the first qualitative ...
Thanks for your supportive comments. Re attribution of symptoms, in general, these have been defined as ‘due to CPPD” or ‘affected joint’ in the defin...
Thank you, Professor Caso, for your kind words and thoughtful support of the CPPD Core Domain Sets. We truly appreciate your recognition of the method...
Thanks for this comment. The decision to develop two core sets was made very early in the development process, with a vote to take this approach at a ...