addition of a new pain measure to POLOS core domain set in the future as relevant to longitudinal outcome measures.
Great work POLOS team. Think its important to measure more than pain intensity and pain interference for the 40% who suffer non-inflammatory pain (nociplastic pain) in RA. Can this instrument (measure) be added to core domain set (pathophysiological) in the future in addition to pain intensity when its developed.
Dear Sharko,
We do agree that pain is more than intensity and interference, and type can be one. This can be captured by the instruments to measure the domain pain. We’re now in the phase of defining the most important domains to measure and pain (in general) was proposed as very relevant by the patients. I really think that, at the domains stage, it is very difficult to go into this much detail but agree that at the instruments one it is advisable, or at least in specific studies.
Thank you for the question,
Loreto
