Collaborators & Partners: refers to those who are responsible for or affected by healthcare and healthcare-related decisions. Other terms may include Interested people and groups, end-users, knowledge users, affected groups, decision-makers, and contributors, among others. We previously used the term ‘stakeholder’ to refer to these individuals, however OMERACT recognized a number of negative historical uses of the word “stakeholder”, such as its colonial roots in which a stakeholder was the person who drove a stake into the land to demarcate the land they were occupying/stealing from Indigenous territories. In this context, it has been suggested that stakeholders should instead be referred to as “partners” or “rights holders” (Government of British Columbia, 2021). Continued use of the term ‘stakeholder’ is disrespectful to our Aboriginal and Indigenous partners. In consultation with the MuSE Consortium and others external to this group we have selected ‘collaborators & partners’ as a suitable replacement. We will shorten this to ‘collaborators’ throughout this paper to help distinguish this group from others (e.g. external groups).
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