About the OMERACT Scleroderma Vascular Disease Working Group
Systemic sclerosis (also called scleroderma) is a multi-system autoimmune disease with several organ- and life-threatening manifestations. Progress in developing effective treatments for scleroderma has, in part, been hampered by a lack of reliable, feasible, and valid outcome measures. The OMERACT Scleroderma Vascular Disease Working Group has been working to draft a core set of domains relevant to the study of two related manifestations of disease: Raynaud’s phenomenon and digital ulcers. This SIG, the first for this group, will outline the significant progress made to date and seek input from the OMERACT community about next steps in the process.
Ariane Herrick
Co-Chair
Peter Merkel
Co-Chair
John Pauling
Co-Chair
Susanna Proudman
Co-Chair
Michael Hughes
Fellow
Nancy Maltez
Fellow
Edith Brown
Patient Research Partner
Virginia Hickey
Patient Research Partner
Overview Video to Systemic Sclerosis with a focus on Raynaud's phenomenon and digital ulcers
RECENT WORKING GROUP PUBLICATIONS
Domain reporting in Systemic Sclerosis-Related Digital Ulcers: An OMERACT Scoping Review
Domain Reporting in Systemic Sclerosis-Related Raynaud’s Phenomenon An OMERACT Scoping Review
Developing a core set of outcome measure domains to study Raynaud’s phenomenon and digital ulcers in systemic sclerosis: Report from OMERACT 2020