About the Patient Outcomes in Longitudinal Studies in RA Working Group
The goal of the OMERACT Patient Outcomes in Longitudinal Studies in RA group is to identify patient-centred long-term outcome domains for long-term studies in patients with rheumatoid arthritis (RA). Patient-centred outcomes are relevant to patients and essential to their well-being. We aim to develop a core set of patient-centred domains for longitudinal observational cohorts and registries collecting long-term data on the outcomes of patients with RA.
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Loreto Carmona
Co-Chair
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Catherine Hill
Co-Chair
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Maria Suarez-Almazor
Co-Chair
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Diego Benavent
Fellow
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Cristiana Sieiro Santos
Fellow
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Niti Goel
Patient Research Partner
POLOS OVERVIEW VIDEO
RECENT WORKING GROUP PUBLICATIONS
Patient Outcomes in Longitudinal Observational Studies (POLOS) of Rheumatoid Arthritis: Determining the OMERACT Core Domain Set
Patient Perspectives on Long-Term Outcomes in Rheumatoid Arthritis. A Qualitative Study from the OMERACT Patient Outcomes in Longitudinal Studies Working Group
Development of a patient-centered core domain set for prospective observational longitudinal outcome studies in rheumatoid arthritis: an OMERACT initiative
Outcomes Reported in Prospective Long-Term Observational Studies and Registries of Patients With Rheumatoid Arthritis Worldwide: An Outcome Measures in Rheumatology Systematic Review
Conceptualizing and Developing Core Outcome Sets Specifically for Long-term Observational Studies: An update from an OMERACT Working Group
Critical Outcomes in Longitudinal Observational Studies and Registries in Patients with Rheumatoid Arthritis: An OMERACT Special Interest Group Report