About the Myositis Working Group

Idiopathic inflammatory myopathies (IIM) are rare inflammatory autoimmune diseases, commonly with primary involvement of the skeletal muscle. IIM are multi-system diseases often extending beyond muscle weakness and may involve the lungs, joints, skin, and the gastrointestinal tract.

The aim of the Outcome Measures in Rheumatology (OMERACT) Myositis group is to identify core domains and instruments that reflect the life impact area in IIM, with strong patient participation.

Helene

Helene Alexanderson

Co-Chair

Jin

Jin Park

Co-Chair

chris mecoli

Chris Mecoli

Co-Chair

lisa

Lisa Christopher-Stine

Co-Chair

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Didem Saygin

Emerging Leader

Ellen Romich

Fellow

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Ingrid de Groot

Patient Research Partner

Catherine s

Catherine Sarver

Patient Research Partner

OMERACT Endorsed Core Domain Set for use in Clinical Trials/LOS in Myositis

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MYOSITIS OVERVIEW VIDEO

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