About the Myositis Working Group
Idiopathic inflammatory myopathies (IIM) are rare inflammatory autoimmune diseases, commonly with primary involvement of the skeletal muscle. IIM are multi-system diseases often extending beyond muscle weakness and may involve the lungs, joints, skin, and the gastrointestinal tract.
The aim of the Outcome Measures in Rheumatology (OMERACT) Myositis group is to identify core domains and instruments that reflect the life impact area in IIM, with strong patient participation.
Helene Alexanderson
Co-Chair
Jin Park
Co-Chair
Chris Mecoli
Co-Chair
Lisa Christopher-Stine
Co-Chair
Dana DiRenzo
Fellow
Didem Saygin
Fellow
Ellen Romich
Fellow
Ingrid de Groot
Patient Research Partner
Catherine Sarver
Patient Research Partner
OMERACT Endorsed Core Domain Set for use in Clinical Trials/LOS in Myositis
Working Group Members:
Adeebah Adams
Ales Ambrozic
Alireza Meysami
Amanda Feagans
Amaury Brianez
Angie Botto-van Bemden
Anupam Wakhlu
Aya Akmal Amin
Bev Shea
Brian Feldman
Catherine Sarver
Chris Mecoli
Chu Hieu chi
Clifton (Bing) Bingham
Corrado Campochiaro
Dana Direnzo
Didem Saygin
Edoardo Conticini
Eduardo Dourado
Elena Garcia Guijarro
Ellen Romich
Esther Francisca Vicente-Rabaneda
Frank Tay
Gabriela Tabaj
Gary Choque
Gehad Maghraby
Ghaydaa Dabie
Helene Alexanderson
Hemalatha Srinivasalu
Ingrid de groot
Ingrid Moller Parera
Jane Hayes
Javier Rios
Jin Kyun Park
Joost Raaphorst
Josephine Park
Ju Yeon Kim
Kaniah Gunter
Kapil Garg
Karen Natali Saravia Chocobar
Karin Lodin
Khaled Abdelgalil
Kyung Min Ko
Lays De Souza
Lesley Ann Saketoo
Lisa Christopher-Stine
Luca Iaccarino
Madusha Menu Cristeen Jayasinghe
Malin Regardt
Manuel Lubinus
Maria Dominguez
Maria Teresa Romero de Albrecht
Marianne de Visser
Maxine Isbel
Merrilee Needham
Michael Maldonado
Minh Vu
Mohammed Osman
Monica Vieth
Nino Tsiskarishvili
Oliver Krâmer
Panagiotis Ermeidis
Patricia Hurley
Pedro Machado
Peter Tugwell
Pierrette Baschung Pfister
Raouf Hajji
Samar Tharwat
Sasikala Bheemireddy
Shinji Izuka
Sike Schluter
Tamer Gheita
Teodora Serban
Tracy Stryczynski
Victoria Werth
Yeong Wook Song
Yuya Imai