About the Myositis Working Group

Idiopathic inflammatory myopathies (IIM) are rare inflammatory autoimmune diseases, commonly with primary involvement of the skeletal muscle. IIM are multi-system diseases often extending beyond muscle weakness and may involve the lungs, joints, skin, and the gastrointestinal tract.

The aim of the Outcome Measures in Rheumatology (OMERACT) Myositis group is to identify core domains and instruments that reflect the life impact area in IIM, with strong patient participation.

Helene

Helene Alexanderson

Co-Chair

Jin

Jin Park

Co-Chair

chris mecoli

Chris Mecoli

Co-Chair

lisa

Lisa Christopher-Stine

Co-Chair

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Didem Saygin

Emerging Leader

Ellen Romich

Fellow

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Ingrid de Groot

Patient Research Partner

Catherine s

Catherine Sarver

Patient Research Partner

OMERACT Endorsed Core Domain Set for use in Clinical Trials/LOS in Myositis

Myositis Onion

MYOSITIS OVERVIEW VIDEO

RECENT WORKING GROUP PUBLICATIONS

  1. Construct validity of PROMIS pain interference, fatigue, and physical function as patient-reported outcomes in adults with idiopathic inflammatory myopathies: An international study from the OMERACT myositis working group

  2. Responsiveness and Meaningful Thresholds of PROMIS Pain Interference, Fatigue, and Physical Function Forms in Adults with Idiopathic Inflammatory Myopathies: Report from the OMERACT Myositis Working Group

  3. The impact of pain on daily activities in patients with idiopathic inflammatory myopathies: Report from the OMERACT myositis working group

  4. Reliability and Validity of PROMIS Physical Function, Pain Interference, and Fatigue as Patient Reported Outcome Measures in Adult Idiopathic Inflammatory Myopathies: International Study from the OMERACT Myositis Working Group

  5. Assessing the content validity of patient-reported outcome measures in adult myositis: A report from the OMERACT myositis working group

  6. OMERACT 2018 Modified Patient Reported Outcome Domain Core Set In The Life Impact Area For Adult Idiopathic Inflammatory Myopathies

  7. Advancing the Development of Patient-reported Outcomes for Adult Myositis at OMERACT 2016: An International Delphi Study

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