a continuum of research that actively engages patients as partners throughout the research process. It focuses on patient-identified priorities and aims to generate knowledge that directly improves patient outcomes. Conducted by multidisciplinary teams in collaboration with key stakeholders (such as healthcare providers, policy makers, and community representatives), this approach seeks to apply findings to enhance healthcare systems and practices. In some contexts, POR also includes people who bring the collective voice of specific affected communities (e.g., individuals living with diabetes).
Synonyms: Patient-Centred Research, Patient-Engaged Research
Example
A research team working on rheumatoid arthritis partners with patients to co-design a study about fatigue management. Patients help identify which outcomes matter most (such as daily function and sleep quality), review study materials for clarity, and co-present findings at a healthcare conference. This is an example of Patient-Oriented Research, as it integrates patient perspectives from start to finish to improve real-world care.
