About the Large Vessel Vasculitis Working Group
Large-vessel vasculitis (LVV) is a rare set of diseases that mainly affect the aorta and its primary branches. The most common of the diseases are giant cell arteritis (GCA) and Takayasu arteritis (TA). Mainly because of the rarity of these diseases, there is no standardized protocol on how to monitor patients, when to repeat arterial imaging, or when to change therapy. This situation leads to significant variations in clinical practice. In the last 5 years, the Outcome Measures in Rheumatology (OMERACT) Vasculitis Working Group has been developing a core set of domains in LVV. The working group recognizes the need to obtain final endorsement of the domains prior to selecting and/or developing associated outcome measurement instruments.

Sibel Aydin
Co-Chair

Haner Direskeneli
Co-Chair

Sarah Mackie
Co-Chair

Peter Merkel
Co-Chair

Kaitlin Quinn
Co-Chair

Sara Monti
Fellow
Fahimeh Farjami - PRP
William Lichliter - PRP
Marleen Morrison - PRP
Pauline Parris - PRP
Working Group Publications
Working Group Members:
Aydin Sibel
Alibaz-Oner Fatma
Dejaco Christian
Direskeneli Haner
Farjami Fahimeh
Grayson Peter
Hatemi Gülen
Kermani Tanaz
Lichliter William
Mackie Sarah
Mahr Alfred
Meara Alexa
Merkel Peter
Milman Nataliya
Monti Sara
Morrison Marleen
Ozguler Yesim
Parris Pauline
Quinn Kaitlin
Robson Joanna
Shea Beverly
Tómasson Gunnar
Tugwell Peter