About the Large Vessel Vasculitis Working Group

Large-vessel vasculitis (LVV) is a rare set of diseases that mainly affect the aorta and its primary branches. The most common of the diseases are giant cell arteritis (GCA) and Takayasu arteritis (TA). Mainly because of the rarity of these diseases, there is no standardized protocol on how to monitor patients, when to repeat arterial imaging, or when to change therapy. This situation leads to significant variations in clinical practice. In the last 5 years, the Outcome Measures in Rheumatology (OMERACT) Vasculitis Working Group has been developing a core set of domains in LVV. The working group recognizes the need to obtain final endorsement of the domains prior to selecting and/or developing associated outcome measurement instruments.

Sibel Aydin

Sibel Aydin

Co-Chair

Haner_Direskeneli

Haner Direskeneli

Co-Chair

sarah mackie

Sarah Mackie

Co-Chair

Peter Merkel

Peter Merkel

Co-Chair

kaitlin quinn

Kaitlin Quinn

Fellow

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Sara Monti

Fellow

 

Fahimeh Farjami - PRP
William Lichliter - PRP
Marleen Morrison - PRP
Pauline Parris - PRP

Working Group Members:

Fatma Alibaz-Oner
Sibel Aydin
Christian Dejaco
Haner Direskeneli
Fahimeh Farjami
Peter Grayson
Gülen Hatemi
Tanaz Kermani
William Lichliter
Sarah Mackie
Alfred Mahr
Alexa Meara

Peter Merkel
Nataliya Milman
Sara Monti
Marleen Morrison
Yesim Ozguler
Pauline Parris
Kaitlin Quinn
Joanna Robson
Beverly Shea
Gunnar Tómasson
Peter Tugwell

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